sadI do not wish you my experience. I do not wish you injury or handicap, however temporary. I do not wish you pain. I do not wish you the soul-bruising frustration of being limited by a body that refuses to listen to your commands, or the salt in the wound that is knowing you did nothing to deserve this: that you didn't injure yourself running a marathon or rock-climbing, but instead fell prey to something that can strike anyone, at any time, for any reason. I do not wish you years spent sedentary, watching your friends rush by able-bodied and healthy, and struggling not to resent them for it.
Instead, I wish you empathy.
I wish for a future where you can look at someone using an assistance device, whether it be a cane, a wheelchair, or a motorized scooter, and think "isn't it wonderful how we live in a world where this person can have the same experiences I do."
I wish for a time where you can see someone using a motorized scooter to enjoy something as large as Disney World and think "isn't that person kind, to spare their friends and family the effort of pushing a manual wheelchair around this huge place, just so that they don't have to experience the nerve-racking stress of navigating something so large and potentially dangerous through a crowd."
I wish for a society where you can listen to simple, necessary requests and hear, not an inconvenience, but a leveling out of a certain small imbalance in the world.
I wish for a place where you can see a wheelchair user sitting to watch a parade and not think "great, let's stand in front of them, that's open space," but instead "isn't it lovely how we can all get a good view."
I am not asking for special privileges. I am not asking to go to the head of the line just because my left foot doesn't work sometimes.
All I am asking is to be allowed, unjudged and unresented, to join the line at all.
Thank you.
May 17 2015, 20:46:16 UTC 2 years ago
I invite anyone who actually thinks that is "easy" or good if you are "lazy" to spend even an hour getting around by such a mechanism and having to stick with it. I'll even let them stand up and walk 1-2 steps when needed for transfers, but no more.
When I was late in my pregnancy with Ian, I was supposed to use the electric carts at stores. And may I just say it sucked? And I could walk into and out of the stores, I could stand up to reach upper shelves, all of that - I was just supposed to minimize walking. It. Sucked. (Although at least, being clearly heavily pregnant, I avoided assholes acting like I didn't need it. Privilege, again.)
I can only imagine that the more you need it and the longer it goes on (and especially somewhere that, you know, people are inclined to say "well if they're not up to it why don't they just stay home?" (because PEOPLE GET TO HAVE FUN DAMMIT)) it sucks worse.
I am so very sorry you had to - anyone ever has to - deal with those attitudes atop having to consider where you could and couldn't go, and how, and etc. :(
May 18 2015, 06:56:50 UTC 2 years ago
And honestly, I think people with chronic pain/mobility issues probably need to get out more than the average person - when you've got that much to deal with, opportunities to relax and have fun help keep you able to deal with it. Being stuck at home and only leaving for necessary errands usually just leads to depression or makes it worse, and then you get trapped in the feedback loop from hell.
May 22 2015, 02:11:49 UTC 2 years ago
June 7 2015, 14:59:03 UTC 2 years ago