Seanan McGuire (seanan_mcguire) wrote,
Seanan McGuire
seanan_mcguire

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Taking care of ourselves isn't always easy.

Things people have said to me recently:

"You look tired."
"You should take some time, you know. Some time to rest."
"You should sleep more."
"You have to take care of yourself."

At the end of the day, I do look tired. Why shouldn't I look tired? I am, after all, working two essentially full-time jobs: I get up at 5am every day to travel from my suburban home into San Francisco, where I put in an eight-hour day before repeating the commute in reverse, and spending the evening writing, editing, and trying to stay on top of my frankly horrifying inbox. When all my must-do items are checked off the list, I collapse on the couch with my cats, and watch mindless television to power down my brain. And then the next day, I do it all over again. On the weekends, I either write like my shoes are on fire, or go to conventions, where I have a lovely time, as long as I don't think too hard about how much catching up I'm going to have to do later.

Why do I do this? Why am I working two jobs, with a massive commute in the middle? It's not because I particularly need the money. I know how to make a pound of hamburger last for a week; it's not pretty, but I can do it. I may like to buy books and toys when the cash is coming in, but I do pretty well with amusing myself on what I have then the cash isn't there. So what's the big deal here?

The big deal is medical insurance. The big deal is what can happen to you when you don't have it. The big deal is that not everyone has friends who can put together an anthology of massively awesome authors to save them from bankruptcy* when they get sick, as people have a natural tendency to do.

Melissa Mia Hall didn't have the same option. She died last week of a treatable medical condition, because she couldn't afford to go to the doctor. She died alone in the night, of something modern medical technology could easily have fixed. And yes, they would have treated her if she'd gone to the emergency room, but she didn't go, because she knew—as the uninsured always learn, as I learned, when I didn't have insurance—that it would be expensive, and she couldn't afford to risk losing everything.

My mother doesn't have medical insurance. Neither does my youngest sister. I work two jobs because I need to have medical insurance, and because I live in honest fear of the day Rachel calls to tell me that Mom was having pain and didn't say anything, because she knew it would be expensive. And if that sounds overly dramatic, well. Take a look at either of the examples listed above. One woman who sought medical care and would have lost everything without her friends stepping in; one woman who chose to die rather than gamble with the loss of everything she'd worked for.

And that's why I look tired, and why I wish people would stop telling me how tired I look. I know how tired I look. I just don't see where I have any other choice.

(*If you missed this: Ravens in the Library was an anthology project organized to pay the medical bills of SJ "Sooj" Tucker when she got hit out of the blue by an illness that required serious hospital care. You can see my original post on the matter here. Without that book, Sooj would have been in a lot of financial trouble. I think that book saved her life as lived, even as the hospital saved her life as living.)
Tags: family, medical fu, utterly exhausted
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I grew up without health insurance, and have lingering problems because of it. One of my cousins died from complications a few weeks after he had minor surgery, because after facing the huge surgery bill he couldn't afford to go back and have them see why he kept getting sicker.
I paid 20k in dental work because I grew up without dental insurance.

The costs are exponential, and so many of them could be prevented with simple maintenance and prevention.
My mother is 60 years old, and has breast cancer. Last summer, before she was diagnosed, the store where she worked closed, and she was let go. She signed up for COBRA, which is good, because otherwise the diagnosis would've been labeled a pre-existing condition on her new insurance.

She works part-time (32+ hours/week) at Macy's, now, and doesn't qualify for insurance through her employer. Through my father's employer, it would cost $2000/month to insure her. My parents make too much money to qualify for the MA health plan.

She was talking about cashing in a 401k account and taking the tax penalty to pay for her health care expenses, until another insurance option opened up for her. They're still paying for my father's health care expenses from when he had a prostate problem that blocked up his kidneys.

I so wish I worked for something other than a non-profit, so I could afford to support them, or at least throw SOME money their way. But I don't dare let my own insurance lapse to look for something more lucrative.

Besides, private sector makes me stabby.
It makes me stabby, too.

alicetheowl

6 years ago

seanan_mcguire

6 years ago

alicetheowl

6 years ago

Yeah. I don't trust myself to talk rationally on the subject of health care in this country. Or the attitudes and prejudices and greed that have led to the system being the way it is. My family has had serious losses in so many different ways simply because of the way our health care system fails to work.

I'm with you on this one, as you know. I hope that things improve within my lifetime, though quite honestly if they don't improve sooner rather than later my lifetime may be shorter than it would be otherwise.
I really wish this weren't so damn true. :(
This is why I moved to a country where health care is considered a basic human right. People who live here can't believe that any country that is proud of itself could think differently. I have had the misfortune to use this health care many times. It is wonderful. At least as good as any insurance I had in the US, and I did have great insurance in the US. Come visit. It'll be fun.
I've never been able to figure out how to emigrate to ANY other country - they don't seem to want people unless they are either already wealthy, or have certain very specific skill sets.

gehayi

6 years ago

seanan_mcguire

6 years ago

Signal boosted, such as I can...
Thank you.
Insurance is so vital. I work for the state, so my coverage is really good, but I was still disappointed that we didn't manage to get a public option when they did the healthcare reform.

I have a friend who actually had to move to a different state to take advantage of coverage in one that was better there.

My sister actually had a plan that didn't cover anything for maternity when she got pregnant, and had to scramble to get something that would cover. Prices for the uninsured are absolutely ridiculous.
Good ye gods.
This post hits me pretty hard. My husband and I were in this predicament before I found my job at the bakery. He was having severe problems breathing, which only got worse. He insisted it was bronchitis, but I knew better. He'd already been in the ICU 2 years prior due to pulmonary embolisms. But we didn't have insurance. He was due to HAVE insurance as soon as the first day of the new college term started (4 weeks after the problem started).

The night he collapsed and stopped breathing, I begged him to go to the hospital. He wouldn't, because we had no insurance and were worse than flat-broke. Thankfully, I had an old friend who does something related to insurance (w/ the state gov't), who mentioned via facebook that some hospitals had a program that used a sliding scale. I researched that same night, we got him there, barely conscious, and he was in the ICU for 2 weeks. Doctors keep telling him they don't know anyone who had what he had--because it kills people over 90% of the time. They DO see it in a bunch of autopsies, though.

Sorry for the rambling. Basically, I know what this tough decision is like. I have a 3+ hr commute daily for a job that pays not much over min. wage, just so we're both insured. It sucks, and I'm always tired, but you do what you have to do.
I am so fucking glad he got better. Too many of these stories end badly.
We haven't got it right here in Australia and I occasionally whinge about the cost of private health care here, but when I see posts like this I know that I've got it pretty easy. I don't get sick very often, but I had some minor surgery last year (I had to have my appendix removed), I looked at what it cost me with my health insurance and then looked at what it would have cost me had I not been privately insured and was quite greatful that I do have insurance.
But at least here in Australia if you had gone to the Emergency department with acute appendicitis and been admitted to the public hospital system it wouldn't have cost you anything at all. AFAICT Usians don't even have that option. That's what really sucks.

kathrynt

6 years ago

seanan_mcguire

6 years ago

This is why I work three jobs, yes. Magazine editor by day, mastermind of a small press by night, and creative director of a comics/gaming studio in whatever few hours I have around that. Only one really pays the bills, and only one provides health care. It's the health care that's most critical...I'm far too scared to ever leave that behind.
Exactly.
When Vicky had to be in the ICU last fall all I could think was Thank Goodness for OHIP. Our taxes pay for our health care, and I will never have to worry about big things. I am always grateful that we have universal health care. Tax dollars at work.
Absolutely.

I wish my tax dollars worked that hard.

mutantenemy

February 2 2011, 00:18:46 UTC 6 years ago Edited:  February 2 2011, 00:20:23 UTC

If anyone would have asked me, "Would you stall going to the doctor out of fear of it being too expensive?", I'd reply with dramatic effect, "Of COURSE not!"

Well, apparently I did just that. I was unemployed for two years and during that time a funky zit formed and decided to make house on my body. I thought nothing of it. "When I get a job & qualify for health insurance, I'll go to a dermatologist and have it removed. No big deal. Besides, I can't afford a doctor."

I should not have waited. Found out a week and a half ago that the "zit" was Basal Cell Carcinoma. It has since been removed. If I would have gone in two years ago, it would have been smaller and they wouldn't need 50 stitches to patch me back up.

I know my experience is minuscule compared to others in more dire situations and that I was damn lucky, but for the first time I can truly empathize why someone would hold off seeing a doctor due to lack of funds / coverage.
I'm glad you're going to be okay.
I'm an artist/photographer and a Mom, and I'm just lucky that my husbands job can pay the bills. Except we can't afford to insure our daughter.
This year was especially tight, between his hours going down and his Health Insurance premiums going up, I have to balance our budget every week. We literally cannot afford to have anything go wrong.
Then we got GREAT news. Because his hours got cut so drastically, we now fall just under the poverty level for FREE State Healthcare through Medicaid.
This means that every month we can use the money we would have spent on insurance premiums for other things, like savings, or bills, or fixing all the things that break.
If we didn't have government healthcare, we'd be screwed. It be just a few months before we'd be putting bills on the credit card, and ensuring our debt forever.
EVERYONE should have access to healthcare, and not have to pay through the nose. Even dental and vision... These facets of life that normal healthcare deems 'unnecessary expenses'. Despite the fact that bad teeth can lead to heart problems, and vision problems can be symptoms of glaucoma or other medical illnesses. God forbid 'standard' insurance help us see or eat. >:-(
I had to go to the eye doctor last year because of a split-screen effect in my vision.

Medicare wouldn't pay.

They said that visits to the eye doctor were "non-essential."

Re: It's sad.

seanan_mcguire

6 years ago

Re: It's sad.

seanan_mcguire

6 years ago

I used to be the CEO of a nonprofit free clinic for people without health insurance, and heard horror stories like that every day, unfortunately. Because our local hospital was for-profit, the ER would send collections after folks who couldn't pay...so people didn't go. We had a woman who was having a heart attack on our front porch have a panic attack when we called the ambulance because she knew she couldn't pay for either the ambulance ride or the ER bill.

Here's a resource: the National Association of Free Clinics keeps a database of free clinics around the country. Just look up clinics by state. You can also do the same for Federally Qualified Health Centers (FQHCs). Here is the national free clinic link.
Oh gracious!! Thank you for that link!!

seanan_mcguire

6 years ago

The U.S. as a whole believes in money, not people.

I just wish we understood that it's the believing that matters, and that it's people who do the believing.
So do I.
Medical insurance issues were what kept me in Canada and commuting to the US when my D and the rest of the family were in Ohio.

I hope that the US is able to move forward and institute something to enable people to get the health care that the US is so proud of being able to provide. Beautiful hospitals and top notch research facilities don't help when you can't go there.

May your energy hold out and your life circumstances allow you to do the things that make you happy without that fear.
Thank you.
I'm sitting here, reading the comments and crying. We all have our stories. Please, continue to let them be heard. Talk until your neighbors tell you to shut up. Too often, the caring intelligent ones are drowned out by the cacophony of the greedy masses. I think that we can make a difference...not just with our votes, but with our voices. Divorce health care from employment and divorce health care from profit.

That would be a nice start.
Grrr. That's all I have strength for. I can remember when Haliburton had to provide health care to the indigent in CA when they borrowed from the state coffers in the 70's. I've been hearing this talk far, far too long and the rumblings of it began then as well. We don't factor in healthcare inflation when you get the figure as part of the financial reports - we should, but it would terrify most.

I've got excellent care through Kaiser these days, shocker that is - I wouldn't have touched them a decade ago. Now? Now I'd like to adopt the world and put them on my plan. Seriously.

That said, I know a few tricks that still work to get care when you fear doing it. I wish I had known. WTF Texas, I swear.
This is so sad and frightening. I hate that this is something people in the US have to worry about, that there's a country that does all these amazing (and sometimes terrible) things, but can't see health care as a something that everyone deserves. I wish things were different for you, and everyone in the US.
Me, too.
Good grief. I had wondered if you were working while writing - my already high esteem for you goes up MORE. I have a good job with a large company, and I stay with it because my wife is home with the three lunatic children - and ALL FOUR OF THEM have medical issues. (This is why I was so excited to get pneumonia last year - can you imagine how frustrating it is to spend more than $10,000 out of pocket on medical issues and none of it on me? Pneumonia - because it's MY TURN, damnit. The 8-yr-old Reigning Queen of Pink has a medical file 3 times the size of mine...)

I'm very lucky to be in the position I'm in, and I know it. I can insure myself and my family, and we're very nearly almost keeping it together on one paycheck (and have been for the last 10 years).

But I can only just barely keep up with my blog, and get a few poems and short stories written once in a while - the job drains my ideas and my energy, and what little's left when I get home goes to the kids until I get them to bed. I don't begrudge the kids (OK, I try very very hard not to begrudge the kids) or my wife, but I certainly can feel good about begrudging the amount of brain energy my job sucks out of me.

So, my hat is off to you. Keep writing!

Also, just for the record - you're maybe not totally world famous, yet, but if the question arose of "Seanan might not be able to keep writing, but sending her money would help," I'm damn sure I'm not the only one who'd find a few pennies here or there for the PayPal button. And we wouldn't all wait for "Zombies in the Library" - although that could be the coolest. Anthology. Evar. ;-) We love you!
Thankfully, my job is relatively non-brain-draining, except in the "causing lots of stress" sense, which can't be avoided in most workplaces. So I grit my teeth and endure.
That is truly awful. I wish I had a solution to offer.
Thank you.
I hope that eventually the so-called majority in this country will evolve enough to see that healthcare is a fundamental human right. So many other countries have gotten to that level of evolution. We are stalled.

I feel for you and the bind you're in. I don't know if you look tired. I can only say that you sound tired. Not necessarily physically tired, but maybe more mentally tired of the grind. I really wish there was some remedy for the whole business. We really need magic, don't we? If I had it, I'd use it to give everyone healthcare and better health.

Hugs.
Aah, but the so-called majority was around for Vietnam and Korea and possibly WWII and therefore they _already HAVE_ federally funded insurance through the VA.

And the opinion of everyone I've talked to* who has coverage under that system is, "I paid my dues defending my country and you're welcome to do the same if you want the coverages I earned but I'm sure as hell not giving them to you for free you ungrateful kids get off my damn lawn."

*I'm sure there are some lovely progressive people covered by VA benefits, but I haven't had the pleasure of talking to them about this topic. For the record the group of "grumpy old men" includes former neighbors, folks at the VA where I did rotations, and both of my parents. I'd hope they'd would know better and decide that their Type 1 diabetic-son-in law deserved to not have to worry about always having a tenure-based job with benefits.

seanan_mcguire

6 years ago

I feel for you, and completely understand - I've got a lifetime membership to the UC Davis alumni association because when I first graduated, joining was the only way I could get insurance that was even vaguely affordable, and the lifetime membership was something like 3 years worth of regular memberships. I'm appalled at what we have to go through here to get decent medical care, and find myself thinking homicidal thoughts whenever I hear a politician claim that we've got the best health care system in the world. I'm not generally a violent person, but that one really gets to me.
I'm amazed we don't see more people committing violent acts to get medical treatment.
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