Seanan McGuire (seanan_mcguire) wrote,
Seanan McGuire
seanan_mcguire

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Cybernetic Space Princess on Mars.

"When I was a kid, I always imagined I'd be normal by now." —Hannelore, Questionable Content.

I had a phone interview the other day in which I was asked about my writing process. I explained it—the checklists, the word counts, the editorial process—and the interviewer laughed and said, "So it's almost like an OCD thing, right?"

"Not almost," I said. "I have OCD."

He stopped laughing.

On most weekday mornings, I get out of bed at 5:13 AM. I write this in my planner. On Wednesdays, I get out of bed at 5:30 AM. I write this in my planner, too. On the weekends, I sleep later; last Sunday, I slept until 8:23 AM. I know this, because I wrote it in my planner.

After I get up, I dress, ablute, and check in online. This is done by visiting Gmail, personal mail, Twitter, LiveJournal, and FaceBook, in that order. Always in that order. I pack my lunch. On weekdays (except for Wednesdays) I leave the house at 5:34 AM, to catch the first bus. I know this, because all these things, too, are written in my planner. So is everything else. What exercises I will do, what my assigned word counts will be, what to remember to say to my roommates, whether it's time to brush the cat...everything.

I have been a member of Weight Watchers since late 2004. I like Weight Watchers. It gives me an excuse to write down everything I eat, and turn every activity into a number to be added to a little column. In the times where I can't attend meetings and get new "official" trackers, those same counts wind up going into my planner, along with a record of what time I took my multivitamin and how much water I've had to drink. What shows I watched that day. What books I read.

Tiny columns of numbers march along the sides of the calendar—how many days to book release, how many days since book release, how many days since I did something that I'm waiting to hear more information on. I record the return dates of shows that I watch, the release dates of movies, the official dates of conventions. Birthdays and ages. I celebrate friendship anniversaries and remember strange holidays that, having made it into my calendar once, are now a permanent part of my personal year.

When I see street numbers or phone numbers or the like, I will automatically start picking them apart to determine whether they are either a multiple of nine or a prime number. Either of these is deeply comforting to me. Numbers that are one digit off in either direction can be distracting, if I've been having a bad enough day. I would be perfectly happy eating the same things for every meal, every day, for the rest of my life.

People sometimes ask me how I can bear it; how I can break my life down into schedules and checklists and tasks without going crazy. But the thing is, that's how my brain works. I look at other people's lives and wonder how they can bear it—having to agonize over menus, not knowing where to sit, not remembering the order of the primes, not knowing when all their favorite TV shows come back on the air. I find the framework of my life to be freeing, not confining, and I don't really comprehend living any other way.

And yes, sometimes I have to make concessions in order to remain stable. I arrive at the airport two hours before my flights, period. I don't care if I have to miss things to do it; the rules say "two hours before," and I arrive two hours before. I become uncomfortable and have difficulty focusing if someone takes my chair in a setting where I have defined patterns. Some things have to be done in a certain order, and if I try to do them in a different order, I am likely to become very difficult to deal with. Failure to complete a to-do list is upsetting to me on a deep, profound level that I have difficulty explaining in verbal terms; it's just wrong. My friends learn that if you're going on a social outing with me, you need to arrive on time or deal with me having a meltdown, that I do not want to have adventurous food, and that I will throw you out of the house if your arrival interferes with standing scheduled events. And the beat goes on.

Because I am very functional, and because the standard image of "someone with OCD" is Adrian Monk or Hannelore, I do occasionally have to deal with people assuming I'm exaggerating. I don't compulsively wash my hands or clean my kitchen, I'm definitely not a germaphore, and if I re-type books completely between drafts, well, that's just a quirk. But obsession and compulsion both take many forms, and while I have found peace with mine, and consider them a vital part of who I am, that doesn't mean they don't exist. (Why I would joke about having something that is considered a mental illness, I don't know.)

Remember that just because someone is a functional, relatively normal-seeming human being, that doesn't mean they're wired the way that you are. I have to remind myself that not everybody wants their day broken down into fifteen-minute increments, because for me, that is the norm. The human mind is an amazing thing, full of possibilities, and each of us expresses them differently. I am a cybernetic space princess from Mars, and that's not a choice I made; that's the way I was made. I can get an address on Earth, but Mars will always be my home.

Whatever planet you're from, that's okay. Just try not to assume that everyone you know is from the same place. I'd be willing to bet you that they're not.
Tags: contemplation, from mars, medical fu, oh the humanity, so the marilyn
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I have Asperger's Disorder, I have had similar experiences.
I can believe it.
I cannot abide the number 35, or any numbers ending in 35--the number is just unfriendly to me. I took one of those "How OCD are you?" mood quizzes once, and all it focused on were germs and cleaning, which is not one of my quirks. I could care less about germs (although I do wash my hands slightly more than the average person--a combined 5 years in food service means I habitually wash my hands a lot), and if anyone ever sees my room they know I'm not a neat freak. But numbers get to me.
Also lists, patterns, and maps. My depression (when unmedicated) makes it hard for me to stick to a planner for long enough to be useful, but there are certain things that must be done in a certain order--QC must be the last comic I look at in a given day, for example.

seanan_mcguire

7 years ago

Me, I wrestle with depression off and on. I suspect that no one creative is actually "normal".

Sometimes, I think no one at all is "normal". Normality is an illusion, an mean of quirks.
Exactly. There is no one in the mainstream.

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Totally new things, I may like. I was surprised to like Indian. Things I have previously put into my face, and disliked? Not gonna start liking.

On the plus side, seventeen is temporary.
I have routines, and they work for me, and they help keep my bipolar disorder from flaring out of control and wrecking my life.

I cannot imagine being that orderly but my life is all about making order from the chaos that is my brain. So I can relate to that part of it.
Knowing the routines you need to stay stable is an amazing asset. I applaud you.

miintikwa

7 years ago

I want to hand this post out to so many people who love me. Different diagnosis but still correct.
I can see that.

popelizbet

7 years ago

Remember that just because someone is a functional, relatively normal-seeming human being, that doesn't mean they're wired the way that you are.

AMEN! I have Asperger's Syndrome, which is on the autism spectrum, and have lots of quirks because of it. I'm also a functional Multiple collective, and a lot of people I tell this to have difficulties with it, since the stereotype of a multiple is full-blown Dissociative Identity Disorder, with the "original" not being able to communicate with the others, and there being drastic, obvious switches from one to another. A lot of people think I'm playing a game or something when I say all of the members of my collective are aware of each other at all times, can hear each other's thoughts, and have a common memory. They just don't *get* that there *are* major differences; everyone in the collective has their own distinct personality. But we co-operate the body, all of us sitting "up front" at the same time, and it can be hard for even people in the know to pick out the individuals at times because we don't generally fight over control of the body. We make decisions collectively, act collectively, unless one of us wants to do something of their own for a while. Also, decades of being bullied for not being normal has made us proficient at pretending to be normal.

I remember back before we were aware of anything other than stereotypical D.I.D./MPD, I was often confused, comparing my observations of others to my self-observations. For the longest time I thought it was perfectly normal to have full-fledged arguments with one's self (internally) about what to do, and I thought it was normal to have half a dozen or more different opinions about things, to be constantly seeing things from multiple perspectives at once. When I started comparing my internal workings to other people, though, I started to get confused. *How* is a bit hard to explain without examples... but basically, I slowly became aware that there was more to my thought patterns than mere randomness or having lots of interests, or moodiness.
Giving examples from the present... whichever of us has the strongest influence at the moment might completely forget something, and another of us will remind them. Or a word will go missing, and someone else will say, "Do you mean ___?" Sometimes we'll stop dead in our tracks and have a 10-minute long, detailed argument internally about what to do next. Things that some of us don't mind or even enjoy, others will be annoyed by. Lo, for example, loves the early work of a band called Skinny Puppy, and rocks out whenever it's on; but Alex has a fit whenever she plays it, since he can't stand it. When waiting in line, some of us are very patient, but Alex is not. The only way we can patiently wait in line without Alex's annoyance being there is if he goes down into The Cellar. (A place in the collective mind we can go to disappear for a while. If anything goes on down there, we can never remember it.) There was even a time, once, when Molly was happily singing to the car radio, and Alex was in a rage at the slow drivers... both at the exact same time. That event was the deciding moment, the moment we *knew*. Because we hadn't seen any indication that anyone else ever had such wildly different emotional states about two entirely different things at the same time. Not alternating, even - at the exact same time!

Because of the constant internal chatter, from the 9 minds in here, and also from non-sentient temporary globules of thought that form like galaxies of thought in the universe of my brain, there's always activity going on in my brain. A lot of it we're not even aware of completely until my brain has come up with something it simply MUST show us. Entire poems have composed themselves down in the parts of my brain we're not consciously aware of, and surfaced ready-made, startling us.

There's far more, but I'm a little tired right now.
Wow.

That's epic. I applaud your realization.

fayanora

7 years ago

You check five social-network sites between 5:13am and 5:34am, and shower?
Impressive. I guess you get a lot done. ^_^
I don't wash my hair in the mornings.
not remembering the order of the primes

Primus, Prima, Nova, Sentinel, Optimus.

(Sorry, had to. I have an inability to resist once-in-a-lifetime opportunities. Hopefully this is less awkward than the singing in the back of the police car one.)
Woo!

You win at random.
So interesting to get a coherent look at how someone else's brain works.

I am solidly at home in chaos, personally---I do write stuff down, quite a lot, but it's more like hanging Christmas ornaments on branches that sail by in a tornado. I'm confident that I can generally let something loose into the whirlwind and have it fly back to me when it's needed, or at least know where to search amidst the wreckage.

It must be cool, though, to have these things in such orderly accessable records when you want them. I tried to keep track of my eating habits a month or so ago, to find out just how disordered they are (being as I am the type of person who can completely forget to eat, or shame myself for wasting money on fast food when it's only six hours until I get home). It lasted a week.

I do love what the whirlwind brings to me, though. Today it gave me a poem I wrote six years ago, and drawings from last semester to improve upon; yesterday I got two model cars and a bra, from where I'd put them and forgot I had them sometime last spring.

My problem with recording stuff is, well, remembering to record it. I'm just about managing with the list of books I've read, over 2 years now, but that's because I deliberately decided to keep it to the bare minimum of information and not to get side-tracked into writing reviews. And because I have the computer on evey day so it's relatively easy to update it. But I tried keeping a journal several times, and gave up after a few weeks each time because I got behind and then has severe disincentive to catch up.

"yesterday I got two model cars and a bra"

Well, that's an unusual present *g*. I'm convinced that things disappear into another dimension, because they re-appear in places where I've looked loads of times before and they weren't there.

kyra_neko_rei

7 years ago

seanan_mcguire

7 years ago

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Being okay with it makes it so much easier to handle. Reasons are vital to sanity.

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Was directed here from sheistheweather's journal. What a wonderfully familiar thing to read.

I used to wonder if I had OCD. I've had serious quirks all my life. I can't eat food without arranging it, and unless it's something that should be touching, it can't touch. My definitions of what should/shouldn't touch make no sense to anyone else but me. Gummy candies are my pride and joy/archnemesis because I get to arrange them in any number of different ways (color and shape) and eat them in the correct order, but if someone comes along and takes one from me, I have to start all over again for fear of catastrophe. I chew on alternate sides of my mouth, always. I can't step on the sidewalk cracks, or I have to step on the sidewalk cracks, depending on where I am and what kind of day I'm having. I make to-do lists down to the most minute of details (1. go home from class 2. watch episode of "Bones" 3. drink tea 4. check email 5. brush teeth), and I have to complete them, like you.

Within the past few years, I'd started to notice the overwhelming presence of things that I assumed were the "panic attacks" that other people referred to, but for me, it was something that had been an ordinary part of my existence. The compulsions come along with it because they're my brain's way of trying to eliminate panic. I'm in acting school at NYU, an emotionally demanding experience, and if there's something that's detrimental to your training, you've got to work it out or you're fucked. Once I started really looking at my life, I saw everything that was somehow dysfunctional about it, and worked it out. My serious anxiety disorder, and the compulsions that came along with it, had become unbalanced. I'm medicated for it now, and in therapy, at long last, and I'm reclaiming balance.

One of the most shaping experiences I've had throughout all this was a comment a particularly harsh director made to me. I'd played Isabella in her production of Measure for Measure, and she told me "I cast you as Isabella because you're a neurotic mess, and I wanted a neurotic mess of an Isabella." I immediately freaked out and talked to my dean of students, sure that this was a horrible mark of character. He knows the director personally, and told me no, she was trying to make me comfortable and aware of an asset that I have that some don't, and how it can work for me as much as possible. We spoke for a really long time about much of what you discuss here, the idea that this is my LIFE, not some strange bug that needs to be eradicated. It's a reality and in some ways a gift. I'm not broken or wrong, and I don't need to feel ashamed about the fact that some might classify me as a neurotic mess. Own it, he said, and be proud of the fact that you're an obsessive perfectionist, because it's how you work, and the world can go fuck itself if people don't want to understand everything that you have to offer. Everyone is wired differently, and if someone doesn't seem to care that you see the world another way, then they're not worth your time.

I really like that idea. It makes me stop having anxiety about my anxiety, and my compulsions, which is one of the most refreshing and reinvigorating conclusions I've ever come to. Thank you so much for echoing it here. And sorry this is so long--it's the first time I've ever discussed this quite so in-depth.
Wow. I can see how that director thought she was helping, and I can also see how it would be hurtful. I'm really glad your dean was able to talk it out for you.

It's okay to be long. I'm sorry I don't have more to say. :)

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My life is a pile of carefully arranged randomness.

Yes.

Exactly.
How I live would drive you nutz. Seriously, I can take or leave a schedule, depending upon how important it is to me at the time. I've been known (well known) to do random acts of fun (like going sky-diving on a whim), striking up conservations with strangers, and answering telephone calls from tele-marketers just so I can hang up on them with my evil laugh.

Because of my job, I do have to get up early to drive to work, but that could be anywhere from 4:00 AM to 5:15 AM, depending on what I need to do that day, or if I just want to get a little reading done in the morning before work.

I have a feeling that if we were RL friends, you'd eventually try to stab me. You wouldn't be the first.
Nah, I have super-random friends. I just establish differential hyperspace models for their behavior, and initiate them when we're going to interact. It works out okay.
I need to print this out and show it to my family -- they know that I'm different, but what they don't get is that different does not equal bad. I'm borderline OCD and borderline ADD, which has got to be the mental quirk combination from hell. Something either holds my interest for so long and so completely that it's almost scary, or it's a just little blip on my radar. There is no in-between.

Saw this and immediately thought of you, since no one else I can think of would appreciate it.
That bug makes me SO HAPPY.
I have asperger's syndrome myself, and while my schedule isn't as tightly set as yours, I still have to do things in the same order every day or else I don't know what's going on. I think that's because time is too much of an abstraction for me. So, it's not the fact that I have to get up at eight and then feed the cat it's I get up and then I feed the cat, no matter what time I get up. Once that's been established, it's impossible to break. If it does break then I get serious anxiety attacks.

Not knowing what's going to happen is probably the scariest thing to me. If I can't plan for it, I don't know how to react to it and then the world falls apart.

However, the worst thing I think is the people who look at me and say "Nah, you're not autistic. You live on your own/finished grad school/can drive/have a 'real' job/can talk..." And I know they're trying to make me feel better (at least I hope so) or something but I keep on thinking about how hard it was to get out of bed and convince myself that I need to go out into the world instead of just ignore it completely.

It just trashes the amount of effort I put into every day of doing things that seem so effortless to other people because I can speak in coherent sentences and look them in the eyes.

And now I've rambled a lot longer than I'm sure is appropriate... so, um. I agree with you.
Your rambling is totally appropriate, and I really share your "why are you belittling my achievements." I regularly get "you need to bend more" when I have formal reviews, from people who are happy to ignore the fact that I make a hundred concessions a day to the "normal" folks around me, because I seem so "normal," too. So my wanting people to be on time for meetings is being overly rigid, not wanting to avoid ending my day in tears (again).

I think we all need to remember that our way doesn't get to win.

kippurbird

7 years ago

seanan_mcguire

7 years ago

kippurbird

7 years ago

upstart_crow

7 years ago

kippurbird

7 years ago

druidspell

7 years ago

This is fascinating shit. Thank you for starting this conversation, Seanan.

I shall add that to the list. (Mary Beth Ellis short story)
Do you happen to mean, by any chance, that you have a list of fiction relating to brain issues? Cuz I'd love to see that.



I don't have a formalized one, but I'm starting to think I need one.

Also, I now really want to write a story with an OCD protag who just copes. No superpowers, no inability to function. There's lots of us.
The only OCD tendencies I exhibit come in the form of an inability to put a problem aside. This has stood me well in my job, though not always my social life.

I've gone through considerable efforts to make my life *more* like the one you describe. I've never quite succeeded, but I'll try again at least twice this year.

When in grad school I came down with a nasty kidney disease, and for several months after I got out of the hospital I had to track how much liquid I drank and how much sodium I consumed, to make sure it was under 2L of liquid and 2g of sodium. My at-the-time-wife couldn't understand why it was that I bothered to track things the doctor said I didn't have to, like how much sodium there is in the apple I ate (1 milligram) - and my thought was, why *wouldn't* I track this? I'm already putting all the effort in to set up the tracking system, I might as well get every last detail because *of course* that's more fun...
Oh, totally. If you're going to track at all, why not catch all the side details? Plus they can start to matter—Weight Watchers calls broccoli a "zero Point food," but I regularly eat six to eight Points of broccoli over the course of a day.

drakemonger

7 years ago

seanan_mcguire

7 years ago

People sometimes ask me how I can bear it; how I can break my life down into schedules and checklists and tasks without going crazy. But the thing is, that's how my brain works. I look at other people's lives and wonder how they can bear it—having to agonize over menus, not knowing where to sit, not remembering the order of the primes, not knowing when all their favorite TV shows come back on the air. I find the framework of my life to be freeing, not confining, and I don't really comprehend living any other way.

So much this.

I got linked here by disabledfeminists.com and this really spoke to me. I'm a big planner type and have lots of constant noise in my head and when I tell people about my rituals and routines and plans (in vague ways even because in detail would be kind of impossible!), they get all stressed out and wonder how I manage. Whereas I sincerely cannot understand how other people manage withOUT doing things this way. Every single thing I do every single second of the day is dictated to me by my OCD and it boggles my mind to try and guess how other people make decisions by themselves!

My bestest friend also has OCD and hers tends more towards checking and the like and we both are so thankful that we don't have the other's OCD. I've found this to be generally true with OCD. Other people's seem terrible, but our own just makes a sort of sense.
I think that's part of why the world has so many issues with anyone on the autism spectrum or some of its cousins. If I don't do that, and you do, one of us must be broken, and since it's clearly not me...

High-five to the planning world!
I've had OCD since I was a very small child, and was officially diagnosed when I finally mentioned my little habits to my therapist.

For me, it's even numbers. If something is small enough for me to eat more than one of it, I must eat it in pairs or amounts that equal out to even numbers. Skittles, pieces of cereal in my spoon, chips, etcetera, all are consumed in twos, fours, sixes, and eights. I consider myself lucky that this doesn't extend to tiny things like rice. If I end up with an odd number of something, I will either save it to be consumed with another odd-number leftover (which feels vaguely wrong on bad days), or throw it away. If I'm particularly stressed, I may also sit down twice (it just looks like I'm adjusting the cushions or my clothing to an outsider), or tap the floor of the room I am entering with my foot, so that it's "the same" as the last time I was in it.

I also am a hand-washer, though milder than the stereotype. I do the typical handwashing after going to the bathroom, handling my snake, and taking the trash out, but I also wash them after I eat, after I smoke, and when I'm in the middle of "dirty" tasks like loading the dishwasher. When I'm alone, I'll wash my hands multiple times after the typical things as well. Hand sanitizer often joins the party, and sometimes stands in for the washing. It's not a bad habit to be in, given that I have long fingernails and multiple piercings (it's nice to be able to adjust your jewelry without having to worry that you're introducing bacteria to an area where it could flourish).

It goes unnoticed by my friends, for the most part. I have other more obvious mental conditions, and if I occasionally hand over an "uneven" piece of candy, no ones complaining. It slots itself in with the other abbreviations on my chart, and as long as my idiosyncrasies aren't interrupted, it does no harm.
When my OCD was at its peak, it was even numbers for me too! Even now I sometimes find myself doing things in pairs when I don't have to, and really not liking doing something in a non-pair.

seanan_mcguire

7 years ago

upstart_crow

April 2 2010, 19:37:59 UTC 7 years ago Edited:  April 2 2010, 19:41:36 UTC

Oh yes, yes! As a child, I had very prominent OCD which pretty much went away/mutated into something that integrated with my depression as I aged. I wish I could just give the second to last paragraph on a post card to every person who is surprised to learn that I'm a depressive with generalized anxiety disorder every time they splurt the euivlalent of "but but but you don't ACT like a TYPICAL person with DEPRESSION, JO!"

ETA: Sorry for the double post there. LJ's being weird.
I wish I was allowed to hit people when they said that stuff. But I am occasionally irrational.

(Double post is cool, I understand.)
I created a LJ acct just so I could comment (below). Since I wrote it, I've seen more of your and others' comments about the distress side of OCD.

I'm so glad this post AND this thread exist. Non-Monkish portrayals of OCD are rare. I think dtigma prevents OCDers from speaking about it. I said to my SO, who has OCD, as she walked by, "I'm reading a blog by someone who has OCD."

She said, "Does she say that she wants to shoot herself in the head?"

I said, "Um, no, she is not talking so much about the anxiety part" (because I hadn't gotten to that yet).

I think your description of your OCD is terrific, and the way you talk about it definitely made me think of people on the autism spectrum who are perfectly happy not being neurotypical. I like that you get across that it's not all about germs for everyone with OCD. Personally, I get sick of people making OCD jokes because they've done some cleaning, because "getting all OCD" seems to be slang for "a cleaning binge," which trivializes and misleads. For one thing, my partner's OCD seriously gets in the way of her cleaning, and people don't get that. It also makes it hard for her to arrive on time for anything, which is another thing people misconstrue. The OCD stereotype IS a stereotype.

However, the part that bothers me most about the general public's obliviousness about OCD (even though two percent of the population has it!) is the focus on the obsessions and compulsions without an understanding of the anxiety that drives them. It seems like you don't experience much anxiety, which is terrific. (You talk about "discomfort" and you mention "meltdowns," but overall, you seem not to experience the level of terror most OCDers I know experience.) Rather, you do an excellent job of showing how your life is structured so that you can (generally) control the things that would otherwise cause anxiety.

For the people with OCD I know -- whose OCD is severe and can be disabling in many ways -- while there are some aspects of it that are the "quirky" things (e.g., we MUST plant the exact same number of bulbs in each plot and they MUST be the same distance apart, just that it feels "correct" that way) that we can laugh about together, there are other parts that are just excruciating.

I think a lot of it might have to do with what your triggers are (whether they are things you can control) and where the OCD originates, as well as the form and severity. For example, for some it is triggered by major trauma, and that seems to go along with the OCD, itself, feeling very traumatizing on an on-going basis. Other people just seem to grow up with it and not think it out-of-the-ordinary.

The way my partner explained it to me is that when there is a trigger (such as a contamination, which is not germs in her case but frequently specific words, which feels like a contamination/attack on her mind), she has to do just the right compulsion in just the right way, all the while with the level of anxiety as if someone was holding a gun to the head of everyone she loves, and if she doesn't get it exactly right, the gun will go off. And of course, when you're doing something that has to be perfect under that kind of pressure and anxiety, it is very hard to get it right the first time, so when you are stuck doing them over and over, it is really torture.

I'm heartily glad for someone with OCD to speak publicly about their experience. I'm extremely glad for you that you suffer so little distress and feel it's basically others' problem, not yours -- pretty much the social versus medical model of disability. I have multiple disabilities; one of them is MCS, and -- like many other MCSers -- I feel, to a certain extent, that it is not my sensitivities that are the problem, it is everyone else's toxic crap polluting the world. But I also wanted to say something for the side that I see very little about, which is the "non-funny" side of OCD that seems so hidden (probably in part because for many with OCD, *talking about the OCD is, itself, an OCD*!). There is so much misunderstanding, shame, and stigma that she would not have been comfortable with me posting about it a few years ago.
This isn't a double-post, and I do have the anxiety; I've just learned to be very good at walking around it. I used to have massive panic attacks, but chose to medicate for those, because they were just leaving me unable to function.

OCD is big and scary, and people need to be willing to admit it, without making it into a joke. Thank you so much for joining in and sharing.
Thank you very much for writing this. Thank you for helping me understand, just a little bit more.
You're very welcome. Thank you for reading.
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